My Story
Are you interested in sharing your story to help others who are affected by Hemiplegic Migraine (HM)? If yes, then you can submit your story to us here.
Rose – Migraines are Not the Boss of Me
The “You are not the boss of me” days seem so far away now. I’ve suffered from migraines since 2006 and hemiplegic migraines since 2008. I suffer chronic and severe migraines, daily. I’ve come to a point where I’ve been basically homebound for a while now. I’ve missed more events in my life and the lives of family than I care to count. Read More
Noelle – My Travels With HM
Looking back over my life, I realize I must have always been having HM attacks; as a small child I had frequent migraines, with auras & scintillating scotoma, although only now do I understand what was probably happening. At the time I could not make my experience understood by my parents or the doctors. Read MoreJulie Mattias’ My Story So Far
Julie Mattias’s – Her story in her own words about her struggles with Hemiplegic Migraine (HM). She speaks about her diagnosis journey as well as her life. Read More
Kerry Sue’s My Story
My first experience with migraine was the result of a scuba diving accident when I was 31. It was concluded that there was nothing wrong with the dive but that my body simply could not adapt to changes in pressure. I would learn just how true that is in the years to come. My symptoms then were unusual, purely neurological—weakness, confusion, disorientation, nausea Read More
Susana’s Story
My name is Susana Penedos. I’m 30 years old and suffer from hemiplegic migraine since age 18. The diagnosis of the disease is only now being completed. I also have fibromyalgia. Read More
E-J’s Story
I’ve had migraine disease for quite a signification portion of my life. I was twelve years old when I experienced my first ever migraine. I had come home from a ski trip and started seeing yellow spots, had a splitting headache on the right side of my head and vomited. My mum gave me an ibuprofen and a glass of ginger tea and sent me to bed; I slept for a good part of eight hours and didn’t experience another migraine until I reached the age of sixteen. Read MoreEmmy’s Story
I’ve suffered with the condition since 1985, I was 5 years old when I had my first attack. Being a child I didn’t really understand why we had to be quiet when my dad had a migraine I didn’t understand what a migraine was. I remember having my first attack and not quite understanding why my body felt funny, why when I went to touch something my hands didn’t work. The pain was horrendous and I didn’t fully understand for a couple of years what was wrong apart from having this thing that my dad had called a migraine. Once I got used to the fact I had them it was ok because I only had up to 5 a year so I could cope with it. Read MoreKristina Richard’s Story
It was 1984, and the 5th bell rang for 6th grade English. It was time to write. I grabbed my pencil and my arm felt like it was a million miles away. The life was being sucked out of my fingers and my hand felt like someone was sticking needles in it. What is going on? Will I be able to write “sfrtc” was being written on the paper by my confused brain. I think I was trying to write “there”. Read More- 1
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